ian@50shadesofsun.com

Try looking in the monthly archives. June 2016

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UK benefit cuts breach human rights, says UN

Those of us with disabilities, as well as other disadvantaged and vulnerable people, have been battling the UK government and its benefit cuts, disguised as so-called welfare reforms, and other austerity measures
Well, now we have official backing. The United Nations […]

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Do MS and Epilepsy share a link? I have both

By the time I went through various tests that led to being diagnosed with multiple sclerosis 14 years ago, epilepsy had already been part of my life since the age of 19. No-one mentioned any link.
The neurologist’s words still ring in my ears. […]

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Referendum, they think it’s all over, but it isn’t yet

To Brexit or not to Brexit, that is the question hanging over the UK´s politicians at the moment. But, surely, the majority of people voted ‘Leave’ in the referendum; it must all be over bar the shouting.
Whatever that might mean […]

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Overwhelming support for free MS stem cell therapy

An interesting question about whether people would choose to have stem cell transplants if they were free was met with overwhelming support in a multiple sclerosis group on Facebook just four days ago.
But first, some caveats: there was nothing scientific […]

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Tomorrow´s wheelchairs and scooters available now

Being diagnosed with a critical illness, disease or disability – in my case multiple sclerosis – is bad news. But when I was diagnosed, in 2002, it was a relief. Relief? Yes, it was a relief because, although not something anyone would […]

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You need to read Willeke´s letter to MS

When I was just thinking of setting up this blog, roughly a year ago as the it went live on August 1, one of the people who encouraged me was Willeke Van Eeckhoutte. She, too, has MS and is herself […]

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‘New for old’ eats up the time

Yesterday was quite a day for me and meant that I did not have enough time to write a blog of the length that 50shadesofsun.com usually publishes.
The cause was the arrival of a brand new laptop computer because my last […]

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UK referendum: Vote to protect those with disabiities

With the biggest decision in a generation set to be decided by the people of the UK, it’s time to protect everyone with a disability in tomorrow’s referendum on the country’s future. A future that is balanced on the proverbial […]

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Memory of exact date of MS diagnosis

Memory is a strange thing and seems to work, or not work, in the most mysterious of ways, just like the concept of God.
My earliest recollection, believe it or not, was as a baby. I can recall being left outside […]

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New MS drug approved in USA and Europe

A new disease modifying treatment is being considered for use in the UK following it being approved in the USA and Europe.
Already approved by America’s Food and Drug Administration (FDA), daclizumab, known as Zinbryta, has now been given the nod […]

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