ian@50shadesofsun.com

Try looking in the monthly archives. December 2016

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Looking back to move forward into 2017

It’s New Year’s Eve and so tonight we bid farewell to 2016 and prepare to welcome the infant 2017.
At this time every year, we hear some people say that they are glad to see the back of an unhappy time […]

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In Moscow for HSCT: Part 3 of Phoebe’s Story

Two weeks ago, I introduced you to Phoebe Scopes, the British woman who was the first international multiple sclerosis patient to receive hematopoietic stem cell transplantation (HSCT) in Moscow. Today, in part 3, Phoebe takes us with her to the […]

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Phoebe Scopes, British HSCT Pioneer in Moscow, Part 2

Last week, I introduced you to Phoebe Scopes, the very first MS patient from another country to undergo hematopoietic stem cell transplantation (HSCT) in Moscow. Today, in Part 2,  we pick up the story of the 46-year-old who lives in London.

Ian: […]

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Barclay death highlights right to die

Andrew Barclay, a 65-year-old British man, died earlier this week. But not any form of death because Andrew, who had multiple sclerosis, chose to end his own life at the Dignitas assisted suicide clinic in Switzerland.
He was accompanied to the […]

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Disability Employment: Nothing Changed in Ten Years

It is now 10 years since my disability, serious mobility issues caused by multiple sclerosis, caused me to leave my last full-time employment.
For a few months, I hung onto the notion that there must be some role for me; one […]

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Meet Phoebe Scopes, First MS Patient from Abroad to Undergo HSCT in Moscow

Hematopoietic stem cell transplantation, or HSCT for short, is provided at various centers around the world to a mix of people with multiple sclerosis.

As regular readers know, two months ago I visited the impressive facilities of the A.A. Maximov Department […]

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Shameful that charities ‘sell out’ people with disabilites

Several leading disability charities are being criticized, by a user-led disability group, for flirting with the Department for Work and Pensions (DWP) and  seeking to gain UK government contracts. The Disabled People Against Cuts (DPAC) said that the charities are […]

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Motability scheme improvements? Really?

How can they do it? That’s the question being asked, and for good reason, after a UK government minister’s amazing statement last week.
And I’d say that not only is Penny Mordaunt, minister for disabled people (and that includes those of […]

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Heeding Advice About Vitamin D Supplement Results in Improvements

 So, I’m four weeks on from starting to take vitamin D supplement. How’s it going?
To be honest, I did not expect much. How could a vitamin make any difference to the multiple sclerosis symptoms that are so much part of […]

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Would you like a helping hand? Maybe not, but …

Giving help to someone with multiple sclerosis, or any other disability for that matter, can be fraught with difficulty for the well-meaning person. And that difficulty comes as much from our reaction as to any mistake on the part of […]

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