ian@50shadesofsun.com

Try looking in the monthly archives. July 2017

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Zinbryta use restricted in Europe after a death and four serious liver injuries

The European Medicines Agency (EMA) has restricted the use of multiple sclerosis drug Zinbryta. The agency took action after a patient died from liver injury (fulminant liver failure). The patient was in an ongoing observational study. Four cases of serious […]

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Missing Pieces: Missing too much to be meaningful

While I hate to decry any research connected to multiple sclerosis, I feel that this is one of those times. I cannot stay quiet.
A new report says 25% people with MS in the UK don’t know about treatments that may […]

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Disability benefit cuts are still a real risk

This week is the first of the six-week summer recess of the UK parliament, which is a great time to look at welfare benefits for people with disabilities.
Regretfully, despite more than a year passing and a new government, albeit the […]

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Speaking out to raise awareness may not be easy but it’s vital

I write and speak openly about the fact that I live with a disability, and have multiple sclerosis. It is not difficult for me. I do it to raise awareness of the disease and to help others.
People often find it […]

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Wheelchair-users not able to board ships at major cruise port – so much for equality

A woman whose husband was told that she could not board a cruise ship at Liverpool, England, has me thinking. The woman has a disability and was denied access because she could not leave her wheelchair to board her ship.
When […]

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Disability rights? Assisted suicide question in court again

People on both sides of the assisted suicide/right to die with dignity debate are in court again this week. And both claim to be working for the good of people with disabilities including multiple sclerosis.
On one side are Noel Conway, […]

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Mobility aids need to be embraced, not feared

We often say that we are people with disabilities, not disabled people. That is, we are people first. I agree with that view, and have said so before.
The overall point is that we are all individuals, we are not our […]

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Humour? We are falling over ourselves laughing

When you live with a disability, whether through multiple sclerosis or another cause, humour can help. It may be a twisted form, but it’s still humour.
I find that, these days, laughter comes when it is least expected.
It can come after […]

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Disabled politician condemns government’s ‘suffer and die’ policies

New Labour MP Jared O’Mara, who has a disability, has accused the Conservative government of introducing policies in the hope that disabled people will “suffer and die”. It is a view with which I find it hard to disagree.
O’Mara is […]

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Awards for good attendance discriminate against sick and disabled

It’s time to take my hat off and salute the eminently sensible views of a mother who talks about her two sons. One chronically disabled with severe cerebral palsy, the other fit and well with a perfect school attendance record.
JJ, […]

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