ian@50shadesofsun.com

Try looking in the monthly archives. October 2017

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New MS studies unveiled at Paris meeting

Two reports from the multiple sclerosis get-together in Paris, held last week, caught my attention.
The session was a joint meeting of ECTRIMS and ACTRIMS, the European and Americas Committees for Treatment and Research in Multiple Sclerosis.
Both items from Paris are […]

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MS therapy alemtuzumab is named a ‘rip-off’ drug, report

Pharmaceutical companies sell some MS disease modifying therapies (DMTs) at extortionate prices. Big pharma stands accused of setting prices to rip-off the public, and the UK’s National Health Service (NHS). Who’d have thought it? I am shocked (well, no, not really).
One […]

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U-turn over plans to delay treatment for people who are newly-diagnosed with MS

Multiple sclerosis campaigners, led by the MS Society, are celebrating a significant victory.
They opposed plans to delay access to disease modifying therapies (DMTs) for people newly diagnosed with MS in Northern Ireland. This is a UK area where certain […]

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Universal credit not so universal after all, conflicting advice about ESA

People unable to work who try to claim universal credit can receive conflicting advice from different UK government officials. Some say the new benefit includes employment and support allowance (ESA), claimed by many with MS, other diseases and disabilities. However, […]

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Disability benefits stopped because government doesn’t understand variable conditions

It’s true. People with variable diseases, such as multiple sclerosis, have known this for some time. It has now been proved. The government does NOT understand variable conditions.
The UK’s Department of Work and Pensions’ (DWP) decision to deny the payment […]

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Competition in disability magazine misleading, advertising watchdog says

Words fail me, well, almost. How ridiculous is this?
The winner of a competition, for which the prize was a holiday, is unable to claim what is rightfully his because of a blunder by the holiday company and the magazine that […]

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Mobility scooters: A question of cruising

Cruise lovers have widely differing opinions about the use of mobility scooters on board ships. And that affects everyone with mobility difficulties, whether caused by a disease such as multiple sclerosis, injury, or even aging.
Their views are included as comments […]

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Lumbar puncture can be a real pain in the ….. head

Just the other day, I was thinking back to the mid-1980s. That was the time that I underwent a lumbar puncture, also called a spinal tap, at a leading London hospital. At the time, I had some symptoms linked to […]

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Doubt that ‘missing’ benefits letter was ever sent

Postal delivery services make mistakes. They all do, from time to time. To err is human and those services are run by …. wait for it …. humans.
Those services can deliver mail after a delay and sometimes, but extremely rarely, […]

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Bill to legalise medicinal cannabis clears first hurdle, but will it go further?

Campaigners for the legalisation of medicinal cannabis are this week celebrating a small victory. Legalisation could help people with multiple sclerosis and other diseases but, realistically, there’s little chance it will become law
Paul Flynn MP.
Paul Flynn, Labour MP for Newport […]

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