UA-79233833-1

50shadesofsun

News and Opinions about MS, Health & Disability

MS Synergy Independent Support Group looks to the future

on August 19, 2015

Scan_mss poster

My beloved Lisa and I were out and about last night We weren’t exactly painting the town red but were attending the monthly social get-together of MS Synergy – our local support group for people who have MS, their families, carers and friends.

The group will be two years old next month, having split from the MS Society in September 2013 following abortive discussions about our desire, indeed our need, to have more of a say about our affairs without interference from the local area branch. When faced with an immovable object that absolutely refused to allow the group to operate free of branch controls but still as part of  the society, everyone involved in the support group decided unanimously to change our status to that of an independent support group.

Since then, the group has flourished. It is now a ‘small charity’ as defined by the Charities Act, the UK law that governs charities in the UK, it has its own health & safety policy including a laid-down risk assessment procedure, holds fundraising activities and is about to publish its second Annual Report.

In the year ahead, there are a couple of potholes in the road to continuing development. The first is that our chairman’s MS has caused his health to deteriorate to such an extent that he feels unable to continue in office; and the second is that Lisa and I are moving to Spain in November. In fact we are leaving on 26th October and going on a holiday to the USA before arriving at our new home.

With Nigel not standing for re-election as chairman and our departure to Spain (I am secretary and Lisa is a committee member), the charity has to look to other members to take on more responsibility. At last night’s social event, we discussed the issue prior to next month’s AGM and the outcome looks encouraging.

One member had already been asked to agree to stand for the role of chairman but she has not, so far, been very keen as she has a lot to cope with personally. She has MS, has three children of her own and two adopted children – quite a commitment. But, last night, another member said that she would be willing to be chairman. So, we were off to a promising start.

Organising the monthly gatherings, which is what we call our get-togethers, including booking the venues and sending out emails or text messages to our members and supporters, has been part of the secretary’s duties but we now have another member who is willing to join the committee and act as ‘gatherings coordinator’. Excellent. Although now retired, her experience as a solicitor may also be useful.

The biggest problem appears to be finding someone to replace me as secretary because no-one seems willing to undertake the role. After our discussion last night, however, we may have found a way through but it will be up to the AGM to decide.

When I detailed the duties our secretary needs to undertake, it became fairly obvious that in today’s electronic world most can be completed anywhere. Rather like working from home instead of commuting to an office. They could, we decided, be carried out as easily in Spain as in Colwyn Bay.

If that is the way that the AGM decides to go and I stay as secretary despite being in Spain, the secretary will not be attending committee meetings or future general meetings in person – but I could be there on a video link using the free Skype system. Of course, there would be a few other small points to clear up but, on the whole, last night the consensus was that we could make it work.

It may not be easy but what is a problem if not a challenge to be overcome?


Leave a Reply

Your email address will not be published. Required fields are marked *

%d bloggers like this: