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News and Opinions about MS, Health & Disability

Silly season lacks real news stories – whether general or about disabilities

It’s silly season right now. At least, it is in the UK and many other countries. In the US, it is called the slow news season. Elsewhere it can be called cucumber time, or another such term.

The reason, of course, is that at this time of year news is harder to come by. Yes, there are still things going on but in the northern hemisphere parliaments and congresses have long summer breaks. So do courts. South of the equator, the season tends to refer to a period surrounding the Christmas and New Year holidays. Remember, December and January are summer months there.

silly seasonSilly season is a term with which I am quite familiar, having spent my career in journalism. I know full well about the scarcity of real news during the summer.

And that’s why we see frivolous news items in the Press that would not be likely otherwise. Frivolous items that give rise to the term ‘silly season’.

It’s true, too, for news about disabilities. Whatever, and however, a disability affects us – developments are scarce during these months. Changes to benefits? Sorry, no, the government is on holiday.

The independent organization Benefits and Work publishes a regular newsletter, but not during the silly season. In its last edition on July 17, it said: “This is our last newsletter, and money-off coupon, until Friday September 6. Parliament is about to go into recess and will return on September 5, briefly, before the conference season begins.

Silly season = slow news

“That should mean that we are spared any more new initiatives or bogus consultations before the Autumn and gives us all a chance to recharge our batteries. But, if anything dramatic does occur relating to benefits, we’ll bring out a special edition.”

In the UK, parliament has not met since July 20 and returns on September 5. In the US, congress finished one week later, on July 28, but also restarts on September 5.

Any news about developments in new drugs and treatment of diseases such as multiple sclerosis? No, not at all. The last news update on the website of the MS Society was posted on June 30. In the USA, the National MS Society last posted a news item on August 8 – and that wasn’t about MS. It was about the congress summer holiday.

And don’t expect to take your benefits claim to court either. The UK High Court’s summer break lasts from August 1 to the beginning of October.

Oh well, it looks as though the news media will, once again, have to resort to the frivolous.

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Affiliate disclaimer: This affiliate disclosure details the affiliate relationships of MS, Health & Disability at 50shadesofsun.com with other companies and products. Read more.

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50shadesofsun.com is the personal website of Ian Franks, a Features Writer with Healthline, the fastest growing health information site. He enjoyed a successful career as a journalist, from reporter to editor in the print media. He gained a Journalist of the Year award in his native UK. Ian received a diagnosis of MS in 2002 and now lives in the south of Spain. He uses a wheelchair and advocates on mobility and accessibility issues.

 

 

 

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Benefits for disabled people are in chaos, government admits delays

Introductions of two flagship benefits that affect people with disabilities are both behind schedule. The government department responsible has confirmed that the nationwide roll out is going slower than anticipated.

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Photo: The Independent.

The UK government’s Department for Work and Pensions (DWP) has confirmed that Personal Independence Payment (PIP) is far behind schedule. This is the benefit brought in to replace the Disability Living Allowance (DLA), which the government thought unfit for purpose.

And the much-vaunted Universal Credit (UC) has just 540,000 recipients, that is 90% behind schedule. UC was designed to replace six other benefits. These are: income-based Jobseeker’s Allowance (JSA), Housing Benefit, Working Tax Credit, Child Tax Credit, income-related Employment and Support Allowance (ESA), and Income Support.

As far as PIP is concerned, all existing DLA claimants should have received ‘invitations’ to claim PIP by April of this year. Well, that didn’t happen, that target is now history. Now, the aim is that all working age DLA claimants will have received their invitation letters by late 2018. And final assessments and transfers are now expected to be completed around mid-2019.

Benefits massively behind schedule

According to Benefits and Work website, there has been a huge fall in the number of DLA to PIP cases being sent to DWP’s assessment companies Atos and Capita since January of this year. So, maybe the DWP will not be able to keep to that new target either.

Roll out of UC is massively behind schedule.  It is unlikely to be completed before 2022.

Call me a cynic, if you like, but I believe that target is wildly optimistic. Most UC claimants so far have made the simplest claims, what’s going to happen when they make complex ones? Can the DWP cope?

Citizens Advice Bureau (CAB) published a report, last month, and urged the government to pause the roll out of UC. This was because of major problems it is causing even the most straightforward claimants, including 57% having to borrow money while waiting for their first payment.

The DWP, however, has dismissed the concerns of the CAB and has confirmed that the roll out of full service UC will increase from 5 areas a month to 50 areas a month from October.

Whether that will happen, though, is matter for conjecture. I have my doubts.

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Affiliate disclaimer: This affiliate disclosure details the affiliate relationships of MS, Health & Disability at 50shadesofsun.com with other companies and products. Read more.

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50shadesofsun.com is the personal website of Ian Franks, a Features Writer with Medical News Today. He enjoyed a successful career as a journalist, from reporter to editor in the print media. He gained a Journalist of the Year award in his native UK. Ian received a diagnosis of MS in 2002 and now lives in the south of Spain. He uses a wheelchair and advocates on mobility and accessibility issues.

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Disability benefit cuts are still a real risk

This week is the first of the six-week summer recess of the UK parliament, which is a great time to look at welfare benefits for people with disabilities.

Regretfully, despite more than a year passing and a new government, albeit the same party, nothing has really changed.

In April last year, I reported that the then secretary for work and pensions Stephen Crabb was about to make a statement about government plans and cuts to welfare benefits. That was after he had said that it had decided not to proceed with planned cuts. They were unpopular with the disability community and controversial within the Conservative party.

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Stephen Crabb.

A month earlier, I wrote an article headed ‘No further plans’ does NOT mean ‘no further cuts’ after Crabb spoke in the House of Commons.

He said that the government “will not be going ahead” with changes to the Personal Independence Payment (PIP) that were announced. He also said there are no further plans for welfare cuts this parliament. (Bold italics are mine).

Their words don’t always mean what you think

I warned that it did not mean PIP was safe – just that the cuts would not be going ahead in the form previously announced. And the part about ‘this parliament’, meant to take us to 2020, is now irrelevant as we have sinve had an early election and have a new parliament.

Then, on May 14, I wrote another post. It was headed ‘No further plans to cut benefits’ pledge lasts 51 days and told of new plans.

Prime minister Theresa May.

About the same time, prime minister Theresa May refused to rule out making further cuts to disability benefits. This wvas widely reported by British daily newspapers.

In March, I wrote about the meaning of the words we heard. In an article headed Don’t be fooled by government’s callous weasel words – disability benefits cuts are still planned, I reported the words of Stephen Crabb as: “We’re not going to be going ahead with these cuts to disability benefits that were proposed on budget day.

“The prime minister has confirmed that himself. I was very clear when I discussed the offer of the job this morning we were not going to go ahead with the cuts that were proposed.”

Cuts to benefits – and weasel words

I also added my own comments:

Sounds good, right? Well, err, no. The key words in the first sentence are ‘that were proposed on budget day’. Similarly, two sentences later the telling words are ‘that were proposed’.

Now, call me a cynic if you like but I have worked as a journalist, spent time in public relations and been around politicians long enough to recognise this for what it is – the use of prepared phrases, or callous weasel words, designed to trick us into thinking the cuts won’t happen.

The government is just trying to buy time to find a way to get them through in another form and without rebellion from within their own MPs.

David Gauke MP. (Picture: South West Herts Conservatives Association).

Trust me, despite what we are being led to believe, the cuts are still very much on the table

What has happened since then? Plenty, but absolutely nothing to prove me wrong or make me change my mind.

As for the current secretary of state for work and pensions, David Gauke, little has been heard, except a change to the timing of a planned increase in the retirement age.

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Affiliate disclaimer: This affiliate disclosure details the affiliate relationships of MS, Health & Disability at 50shadesofsun.com with other companies and products. Read more.

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50shadesofsun.com is the personal website of Ian Franks, a Features Writer with Medical News Today. He enjoyed a successful career as a journalist, from reporter to editor in the print media. He gained a Journalist of the Year award in his native UK. Ian received a diagnosis of MS in 2002 and now lives in the south of Spain. He uses a wheelchair and advocates on mobility and accessibility issues.

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Atos tries to escape its past though superficial rebranding

There is a new company providing assessments of people claiming government disability benefits in the UK. Well, no, there isn’t.

You see, the new name, Independent Assessment Services, is just a rebranding exercise.

True, the name is new but it is the same bad old company.  It is still Atos Healthcare but now in disguise. No doubt it hopes to escape its reputation. as Atos has been the subject of numerous allegations.

atosIts assessors have been accused of numerous, serious and harmful failings in the way they have carried out assessments. The most recent example is that one of its assessors left a disabled woman to sit in her own urine for nearly two hours. Now, Atos launched an investigation.

This was after a Disability News Service (DNS) investigation that found many cases where claimants described how assessors from both Atos and the other assessment company Capita, filed dishonest reports of face-to-face assessments.

According to DNS, Gail Ward, from disability activist Black Triangle Campaign, responded to the rebranding by accusing Atos of “trying to create a “smokescreen” to cover up its “incompetence” in carrying out assessments.

She said: “Atos can rebrand all they wish. We will still call them Atos at every opportunity.”

She stated that Atos’s actions had left many disabled people trapped in their own homes, after losing their entitlement to Personal Independence Payment (PIP), with many having to return their Motability vehicles.

Many grassroots campaigners were receiving requests for help in dealing with “fabrication of facts” in Atos PIP assessment reports. This had caused many sick and disabled people “a great deal of distress”.

Her Black Triangle colleague John McArdle added: “Atos has not changed its spots and is still working as the government’s henchman.

“We see the same litany of wrongdoing reported by DNS. Fraudulent reports, and catastrophic harm being caused to disabled people.”

He said the attempt to rebrand itself as a “respectable organisation” would fail6. He added: “Atos is infamous for carrying out systematic abuse of the fundamental human rights of disabled people.

“It is a toxic brand. It is a byword for corporate wrongdoing worldwide.”

Atos defends new name

An Atos spokesman said last week: “We believe the new name better reflects the role the company undertakes on behalf of the Department for Work and Pensions and the assessment work the company carries out.

“The change also follows the first independent review by Paul Gray which recommended a number of changes to claimant communications.

“It was planned and implemented in consultation with a number of disability representative organisations. They are supportive and welcome the change.”

However, DNS denied that. It said: “The two disability organisations Atos said supported the name change told DNS that they did no such thing.”

Interesting!

The spokesman added that policies – and assessment procedures – remain unchanged,

Now, that is a shame, because it seems that all the problems stem from those policies and procedures.

Changing the name is not enough. It is superficial. The company needs to change how it does its work, its culture.

People who are responsible for dishonest assessments, whether individual assessors or in management, have no business being there. Heads should roll.

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Affiliate disclaimer: This affiliate disclosure details the affiliate relationships of MS, Health & Disability at 50shadesofsun.com with other companies and products. Read more.

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50shadesofsun.com is the personal website of Ian Franks, a Features Writer with Medical News Today. He enjoyed a successful career as a journalist, from reporter to editor in the print media. He gained a Journalist of the Year award in his native UK. Ian received a diagnosis of MS in 2002 and now lives in the south of Spain. He uses a wheelchair and advocates on mobility and accessibility issues.

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New welfare boss is either loyal party stooge or genuinely uncaring

David Gauke is the new man in charge of the Department of Work and Pensions (DWP) in the UK. He has been appointed by lame duck prime minister Theresa May.

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David Gauke MP. (Picture: South West Herts Conservatives Association).

So, as the PM works on a deal with the Democratic Unionists, can we expect more compassion from the DWP? Regretfully, the answer is ‘no’.

Look at the way Gauke has voted on welfare and benefits in the House of Commons to see the truth.

Gauke’s voting record

TheyWorkForYou.com says this is how David Gauke voted:

  • Generally, he voted to reduce housing benefit for social tenants deemed to have excess bedrooms. Labour describes this as the “bedroom tax”. 11 votes for, 0 votes against, 6 absences, between 2012 and 2014.
  • He consistently voted against raising welfare benefits at least in line with prices. 0 votes for, 5 votes against, in 2013.
  • Almost always, he voted against paying higher benefits over longer periods for those unable to work due to illness or disability. 0 votes for, 13 votes against, 2 absences, between 2011 and 2016.
  • He consistently voted for making local councils responsible for helping those in financial need afford their council tax and reducing the amount spent on such support. 4 votes for, 0 votes against, in 2012.
  • Almost always, he voted for a reduction in spending on welfare benefits. 45 votes for, 1 vote against, 8 absences, between 2012 and 2016.
  • He consistently voted against spending public money to create guaranteed jobs for young people who have spent a long time unemployed. 0 votes for, 9 votes against, between 2011 and 2014.

Still no care at top?

That means David Gauke is loyal and votes as he is told by his party. Either that, or he is as genuinely uncaring as his Conservative predecessors.

Whichever is true, his appointment seems likely to prove disappointing for all who receive welfare benfits. And that includes everyone who is elderly, has a disability, has a low income, or is without a job.

Source of voting record: TheyWorkForYou.com. For an explanation of the vote descriptions please see the FAQ entries on vote descriptions and how the voting record is decided.

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Affiliate disclaimer: This affiliate disclosure details the affiliate relationships of MS, Health & Disability at 50shadesofsun.com with other companies and products. Read more.

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50shadesofsun.com is the personal website of Ian Franks, a Features Writer with Medical News Today. He enjoyed a successful career as a journalist, from reporter to editor in the print media. He gained a Journalist of the Year award in his native UK. Ian received a diagnosis of MS in 2002 and now lives in the south of Spain. He uses a wheelchair and advocates on mobility and accessibility issues.

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Election 2017: Labour to reform welfare benefits and end freeze

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All three main UK political parties have put stated their plans for state welfare benefits, should they win the general election.

Of course, realistically only the existing government Conservatives or the major opposition Labour party, can win. The Liberal Democrats have no chance. I have ignored the UK Independence Party (UKIP) as polls show its support has collapsed.

Labour’s shadow chancellor (finance minister) John McDonnell says his first budget will include a package of reforms, in effect ending the present government’s freeze on benefits. The freeze on working-age benefits started in 2016, and welfare payments are capped at their current rate until 2019.

Speaking on the BBC TV’s Andrew Marr show, Mr McDonnell spoke of Labour’s proposals. He said the party ‘would ensure that in effect we would be addressing ….. how we reverse the benefit freeze itself’.

Benefits reform package

He said: “We’re putting £30bn in over the lifetime of a parliament into welfare. We’re reforming the whole process ….. and the implication will be ….. the impact of these proposals will make the freeze irrelevant.

“I want to do it as part of an overall reform package and not just pick off one by one.”

Labour leader Jeremy Corbyn said the freeze is ‘unfair’ and ‘would be ended’.

Manifesto pledges

The party’s manifesto includes pledges costing £48.6 bn, to be funded from extra tax revenue.

Labour’s manifesto also includes plans to scrap the bedroom tax and, restore housing benefit for those under 21. It includes, too, an increase in Personal Independence Payment for peole living with disabilities.

According to the Conservative manifesto, Theresa May’s party has “no plans for further radical welfare reform”. It will continue to roll-out of Universal Credit – the much-maligned single monthly payment to replace many other benefits.

The Liberal Democrats also say they’d end the benefits freeze and reverse disastrous welfare cuts made by the current government.

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Affiliate disclaimer: This affiliate disclosure details the affiliate relationships of MS, Health & Disability at 50shadesofsun.com with other companies and products. Read more.

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50shadesofsun.com is the personal website of Ian Franks, who is Features Writer for Medical News Today. He has enjoyed a successful career as a journalist, from reporter to editor, in the print media. During that career he gained a Journalist of the Year award in his native UK. Diagnosed with MS in 2002, he continued to work until mobility problems made him retire early in late 2006. He now lives in the south of Spain. Besides MS, Ian is also able to write about both epilepsy and cardiovascular matters from a patient’s perspective. Besides that, he is a keen advocate on mobility and accessibility issues.

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Election: Which Party will be Best for People with Disabilities?

I have an interest in elections and politics that started more than 50 years ago. And, yes, I have delivered leaflets and even canvassed for candidates.

Today, though, I decide election by election how to vote and support the party that has policies with which I agree.

And that’s why on June 8, I shall be voting in the UK general election as someone with a disability. But who to vote for? The one that give people with disabilities a fair deal.

For the last seven years, the UK has seen nothing short of government persecution of disabled people. For the first five years it was a Conservative-Liberal Democrat coalition then, for the last two, the Conservatives alone.

Regretfully, there is no sign of a change of heart.

labourNow, let’s look at the official opposition; the Labour Party.

The party’s manifesto has not been published yet, but a copy of the draft has been leaked. And what it contains is revealing.

For the many not the few

Titled “For the Many not the Few”, the leaked draft says:

Labour will act immediately to end the worst excesses of the Conservative government’s changes. We will:

  • Scrap the punitive sanctions regime.
  • Scrap the bedroom tax.
  • Reinstate housing benefit-for-under-21s.
  • Scrap bereavement support payment cuts.

We will also review the cuts to work allowances in Universal Credit, and also review the decision to limit tax credit and Universal Credit payments to the first two children in a family.

The Tories haven completely failed on their promise of making work pay, of tackling the barriers to work faced by disabled people.

Labour supports a social model of disability. People may have a condition or an impairment but are disabled by society. We need to remove the barriers in society that restrict opportunities and choices for disabled people.

We will build on the previous Labour government’s commitment to disabled people in 2009 as signatories to the UN Convention on the Rights of Persons with Disabilities, and incorporate it into UK law.

Labour: Social Security Bill

Labour will repeal the following cuts in social security support to disabled people through a new Social Security Bill published in our first year of office to:

  • Increase ESA by £30 per week for those in the work-related activity group and repeal cuts in UC LCW (Limited Capability for Work Element).
  • Uprate carer’s allowance by £11 to the level of Jobseekers Allowance.
  • Implement the court decision on PIP so that there is real parity of esteem between those with physical and mental health conditions.
  • Scrap the Work Capability and Personal Independence Payment assessments and replace them with a personalised, holistic assessment process which provides each individual with a tailored plan, building on their strengths and addressing barriers.
  • End the pointless stress of reassessments for people with severe long-term conditions.
  • Commission a report into expanding the Access to Work programme.

We will change the culture of the social security system, from one that demonises people to one that is supportive and enabling.

As well as scrapping the Conservatives’ punitive sanctions regime, we will change how Jobcentre Plus staff are performance managed.

Labour will strengthen access to justice for disabled people by enhancing the 2010 Equality Act enabling discrimination at work to be challenged. We will ensure that under the Istanbul Convention, disability hate crime and violence against disabled women is reported annually with national action plans to address these.

Decision time

I have never before used this website to urge support for one party over others.

I am not a natural Labour voter.

But, having lived through seven years of cuts and read that draft manifesto, I shall vote Labour on June 8.

If you have a vote in the UK election, join me and vote for the caring policies, vote Labour.

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Affiliate disclaimer: This affiliate disclosure details the affiliate relationships of MS, Health & Disability at 50shadesofsun.com with other companies and products. Read more.

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50shadesofsun.com is the personal website of Ian Franks, who has enjoyed a successful career as a journalist, from reporter to editor, in the print media. During that career he gained a Journalist of the Year award in his native UK. Diagnosed with MS in 2002, he continued to work until mobility problems made him retire early in late 2006. He now lives in the south of Spain. Besides MS, Ian is also able to write about both epilepsy and cardiovascular matters from a patient’s perspective. Besides that, he is a keen advocate on mobility and accessibility issues.

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People with Disabilities are Right to Fear a May Victory

election

Theresa May, Conservative.

So, the people of the UK are facing a second general election in two years. And people with multiple sclerosis and other disabilities are worried what the results of polling day may mean for them. It could give prime minister Theresa May even more MPs to support her European exit strategy which is likely to lead to reduced benefits.

Mrs May has repeatedly dismissed the idea of holding another election but the fact that she now has one so is no real surprise for anyone with a healthy skepticism towards the honesty and trustworthiness of politicians of any nationality.

By calling an early general election, the prime minister gas gone back on her own statements. Indeed, she has repeatedly refused to call an election earlier than the due date of 2020.

Jeremy Corbyn, Labour.

In the last weeks and months, her spokesmen have maintained her public position that she herself expressed on the BBC TV’s Andrew Marr Show last year, Mrs May herself said: “I don’t think there’s a need for an election. I think the next election will be in 2020.”

When pressed by Marr, May was more direct, saying: “I am not going to call a snap general election.”

No ifs, no buts – just a categoric statement that there would not be early an election.

Tim Fallon, Liberal Democrat.

This week came her announcement. The prime minister went back on her word and called a snap general election to be held on June 8.

Should we be surprised? Of course not, it’s just another politician proving you can’t believe a word they say.

Let’s consider what it means. Of course, all UK citizens will potentially be affected, whether or not they vote. And that’s because the composition of the House of Commons will materially affect the outcome of the Brexit negotiations which could significantly shape their future.

Then there are those of us who are receiving disability benefits. We stand to be affected by the fact that UK laws are likely to be less generous without the EU looking over its shoulder.

Paul Nuttall, UKIP.

The likelihood of a Conservative government in a UK, without EU constraints, is not something that I can anticipate with much pleasure, in fact not with any pleasure at all – but, while I live in Spain, at least I have the right to vote back in the UK.

 

 

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50shadesofsun.com is the personal website of Ian Franks, who has enjoyed a successful career as a journalist, from reporter to editor, in the print media. During that career he gained a Journalist of the Year award in his native UK. He was diagnosed with MS in 2002 but continued working until mobility problems forced him to retire early in late 2006. He now lives in the south of Spain. Besides MS, Ian is also able to write about both epilepsy and cardiovascular matters from a patient’s perspective and is a keen advocate on mobility and accessibility issues.

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More flock to accuse disability assessors of lying

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Isn’t it amazing how the number of people who choose to speak out about injustices multiply once the first reports are published

Many more disabled people have come forward to describe how the healthcare professionals who assessed them for the UK government’s disability benefits lied in the reports they compiled. The benefits are paid to people with many different disabilities including multiple sclerosis.

Their evidence further confirms the results of a two-month Disability News Service (DNS) investigation, which revealed last week how assessors working for the outsourcing companies Capita and Atos – most of them nurses – had repeatedly lied, ignored written evidence, and dishonestly reported the results of physical examinations.

disability-news-serviceHaving seen the first revelations of the DNS, more personal independence payment (PIP) claimants have come forward with their own evidence of dishonest assessors.

The second DNS report said:

One PIP claimant, who has impairments including ME, fibromyalgia and a heart condition, has described how his disability living allowance (DLA) award of the higher rates for both care and mobility was lost after his PIP assessment left him with zero points (a claimant needs eight for the PIP standard rate and 12 for the enhanced rate).

He remembers his assessor telling him when she arrived at his home and he asked if she knew anything about ME and fibromyalgia: “I’ve dealt with a couple of people with yuppy flu before.”

He said: “When I received the assessor’s report I thought it was for another person as it contained so many omissions, inaccuracies and conjecture. There were also several instances of fabrication.”

Information from his previous applications for incapacity benefit, DLA and employment and support allowance (ESA), and his successful appeal decisions for DLA and ESA at tribunal, had been omitted from her report.

David told DNS: “The report states I carried out tiptoe and ‘balancing on each foot’ tests and had no problems walking. I did not walk a step and did not carry out the tests described.

“The report states that I turned around in my chair and picked up a bottle of medicine from the surface behind me – the surface behind me was an oven hob and all my medication was on the table in front of the assessor.”

When he described how his medication had sent him to sleep in his back yard, the assessor claimed that he said instead: “I wonder [sic]round the fields outside my house,” while being able to open a ring-pull can was interpreted as “able to prepare a meal”.

He is appealing the decision, and is complaining about his assessor to the Nursing and Midwifery Council.

David said: “Since receiving the report, the consequences of dealing with the complaints procedure and making another tribunal appeal have been a noticeable deterioration in my health and have put a strain on both my wife’s and my own mental health (loss of peace of mind, anxiety, knocks to self-confidence and a feeling of being discriminated against because of the nature of my disability).”

Many other claimants came forward and told similar stories.

A DWP spokeswoman told the DNS:

“We expect the highest standards from the contractors who carry out PIP assessments.

“We do not accept it to be the case that there is dishonesty amongst them.

“As we said, we are committed to making sure the PIP assessment process works fairly and effectively, which is why we welcome independent reviews such as the ones led by Paul Gray, the second of which is expected in April 2017.

“Anyone not happy with their benefit decision can ask for it to be looked at again, and then appeal to an independent tribunal.

“There is also a comprehensive complaints procedure in place for claimants who are not happy with the service they have received from providers.”

So many tales of wrongdoing, yet the government department does not accept there is dishonesty among its contractors’ assessors. What is wrong? It is high time that government ministers and civil servants opened their eyes, ears and put whatever brains they have to good use. In fact, the evidence exists, they just need to approach it with open minds. It is time for action not complacency or denial.

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People with MS receiving higher rate mobility allowance slashed by almost half

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Amazing and terrible figures about the differences in payments between two of the UK’s disability benefits have been uncovered by the BBC’s Victoria Derbyshire Show by using the Freedom of Information Act.

The differences relate to payments made through the Disabled Living Allowance which is being phased out in favour of the newer Personal Independence Payment. Both benefits have two sections, one for care and one for mobility. Both of those are paid at different rates, dependent of the level of the claimant’s disability.

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Photo: The Independent.

And the absolutely terrible news is that the official figures, revealed by the Freedom of Information Act enquiry, reveal that number of recipients of the higher level of the mobility component has been slashed during the change from one benefit to another.

For people with multiple sclerosis, while 93% of DLA claimants got the higher rate of the mobility component, under PIP this has almost halved to 50%.

In the case of those with Parkinson’s, the situation is even worse as the numbers have fallen to less than half from82% down to just 40%.

The most shocking of all is that while 83% of people with rheumatoid arthritis who were DLA claimants got the higher rate of the mobility component, but under PIP this has plummeted by more than two thirds to a miserable 24%.

Benefits and Work website that advises people with disabilities about claiming benefits has been at the fore front of the fight against the transition from the DLA to PIP, point out that the unfairness of the system is worse than just mobility component.

On the website, this week, it says: “Some claimants, such as Wendy who has early onset Alzheimer’s, get an award of PIP and then 18 months later are found to have improved to the extent that they no longer qualify for anything.”

Now, I think that that is a pretty amazing recovery!

Benefits and Work continues: “It was clear from the outset that PIP’s main purpose was to cut costs. It is now equally clear that the DWP (Department for Work and Pensions) don’t (sic) care who has to pay the price for those cuts.”

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ian profile50shadesofsun.com is the personal website of Ian Franks, who is Managing Editor (columns division) of BioNews Services. BioNews is owner of 50 disease/didorder-specific news and information websites – including MS News Today. Ian has enjoyed a successful career as a journalist, from reporter to editor, in the print media. During that career he gained a Journalist of the Year award in his native UK. He was diagnosed with MS in 2002 but continued working until mobility problems forced him to retire early in late 2006. He now lives in the south of Spain. Besides MS, Ian is also able to write about both epilepsy and cardiovascular matters from a patient’s perspective and is a keen advocate on mobility and accessibility issues.

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