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News and Opinions about MS, Health & Disability

It’s 2018 – some important events to watch out for this year

Happy New Year to you all.

To get your year off to a good start, here are a few important dates for your new 2018 diary.

February 1 – 3

ACTRIMS Forum, San Diego, California, USA

The third annual Americas Committee for Treatment and Research in Multiple Sclerosis (ACTRIMS) Forum is themed “Therapeutic Targets in MS: The Frontier and the Future of Disease Modifying Therapy”.

Highlights of the forum will include the Kenneth P. Johnson Memorial Lecture and the National Multiple Sclerosis Society Barancik Award presentation and talk. In addition, two poster sessions will showcase approximately 200 posters.

April 7 – 15

MS Focus Cruise for a Cause, MS Focus at Sea – Mind and Body, aboard Celebrity Equinox.

A seven-night cruise to the Southern Caribbean, with educational programs from MS experts. MS Focus Cruise for a Cause offers on-board workshops and discussion groups on important topics to those with MS. Leading MS neurologists and other healthcare professionals will present the latest information on MS research and treatments. Also, on-board support group meetings will serve to motivate and inspire both people with MS and caregivers.

Cruisers will be able to get out and explore ports of Oranjestad, Aruba; Willemstad, Curacao; and Kralendijk, Bonaire.

April 23 – 24

International Conference on Brain and Neurological Disorders, Amsterdam, Netherlands

The main aim of the 7th International Conference on Brain Injury and Neurological Disorders is to provide an opportunity for establishing collegial relationships with the international professionals focused on the science of brain injury research.

May 30 – June 2

CMSC Annual Meeting, Nashville, Tennessee, USA

The Consortium of MS Centers annual meeting has a four-day agenda filled with lectures, symposia, workshops, roundtables, and satellite programs designed to enhance professional practice and improve treatment outcomes in multiple sclerosis. The annual meeting of the CMSC typically hosts over 2000 delegates and over 70 exhibitors.

The educational content designed to provide the latest information on the art and science of MS care. There are over 130 educational hours to meet the needs of our multi-disciplinary learners: physicians, nursing professionals, rehabilitation specialists, mental health experts, advocates, and pharmacists.

This year’s agenda features national and international experts on comprehensive care and research, basic information for novice clinicians, advanced clinical courses to enhance professional performance, and specific tracks for neurologic clinicians, nursing professionals, rehabilitation specialists, mental health experts, and patient advocates.

May 31 – June 2

23rd Annual Conference of Rims ‘MS Rehabilitation across the Lifespan’, Vrije Universiteit Amsterdam, Netherlands

The RIMS Conference is claimed to be the main European event for healthcare professionals, researchers and patient representatives. The aim is for them to share their knowledge and experiences, and collaborate on topics related to rehabilitation in Multiple Sclerosis.

In 2018, the conference main theme is ‘MS Rehabilitation Across the Lifespan’, and covers four areas: health promotion, supporting self-management, physical transition through the disease course, and social transition through the disease course.

July 16-17

25th World Congress on Neurology and Neurodisorders, Melbourne, Australia

The 25th World Congress on Neurology and Neurodisorders will be themed “Exploring Novel Technologies in Neurology and Neurological Disorders”. It aims to bring together medical professionals related to the field of neurology to discuss and spread awareness about the importance of prevention of neurological disorders and the challenges in this field. 

October 10 – 12

congress34th Congress of ECTRIMS, Berlin, Germany

European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS) Congress has a programme designed to catch the most exciting new developments in all areas of multiple sclerosis, including treatment, genetics, pathology, imaging, immunology and epidemiology.

It highlights several topics including multi-omics analysis, big-data-mining, predictive algorithms, and medical robotics. ECTRIMS also wants to address recently emerging technologies with potentially high impact for multiple sclerosis, including proteomics, deep sequencing, immunophenotyping and molecular imaging.

Owing to the growing number and complexity of treatment options, the dialogue between “stakeholders” (neurologists, patients, health insurers, pharmaceutical industry) on the one side, and regulatory authorities on the other, is more important than ever. Organisers have therefore added several topics with specific input from regulators, including a hot topic on “Biosimilars in multiple sclerosis”, which impinge on worldwide access to immunomodulatory treatments.

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Affiliate disclaimer: This affiliate disclosure details the affiliate relationships of MS, Health & Disability at 50shadesofsun.com with other companies and products. Read more.

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50shadesofsun.com is the personal website of Ian Franks, a freelance medical writer and editor for various health information sites. He enjoyed a successful career as a journalist, from reporter to editor in the print media. He gained a Journalist of the Year award in his native UK. Ian received a diagnosis of MS in 2002 and now lives in the south of Spain. He uses a wheelchair and advocates on mobility and accessibility issues.

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Note: Health-related information available on 50shadesofsun website is intended for your general knowledge only and is not a substitute for medical advice or treatment for specific medical conditions. I am not a doctor and cannot and do not give you medical advice. You should seek prompt medical care for any specific health issues and consult a doctor before starting a new diet or exercise programme. Any opinions expressed are purely my own unless otherwise stated.

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Steps to Overcoming MS but MS Society warns diet is unproven

Overcoming MS (OMS) is a popular, yet unproven, diet and lifestyle programme for people with MS. And in just under two weeks, on Sunday October 22, you can learn more about it at an OMS conference in Brighton, UK.

OMS

Professor George Jelinek (Pic: Overcoming MS).

Overcoming Multiple Sclerosis claims to promote the integration of diet and lifestyle changes into standard medical management to improve the health and lives of people with multiple sclerosis”. Professor George Jelinek, of Melbourne, Australia, developed the OMS Recovery Programme more than 15 years ago. He received a diagnosis of MS in 1999.

OMS started in Australia and New Zealand. It is a non-profit organization and accepts no funding from the pharmaceutical industry. In 2011, it formed a charity in the UK to with the aim of making the OMS programme available worldwide.

omsThe one-day conference is to include a number of presentations These are to focus on the seven steps of the recovery programme: diet, sunlight and vitamin D, exercise, meditation, medication, preventing family members from getting MS, and doing whatever it takes to overcome MS.

Organisers say the event will be of value to anyone, whether newly diagnosed, new to OMS or someone who has already been on the recovery programme for some time.

OMS step by step

So, what’s in the OMS recovery programme? To summarise:

  • Diet and supplements
    • A plant-based wholefood diet plus seafood, with no saturated fat, as far as is practical
    • Omega-3 fatty acid supplements: Take 20-40mls of flaxseed oil daily; fish oil can be used instead if desired
    • Optional B group vitamins or B12 supplement if needed
  • Vitamin D

    • Sunlight 15 minutes daily 3-5 times a week as close to all over as practical
    • Vitamin D3 supplement of at least 5000IU daily, adjusted to blood level
    • Aim to keep blood level of vitamin D high, that is between 150-225nmol/L (may require up to 10,000IU daily)
  • Meditation

    • 30 minutes daily
  • Exercise

    • 20-30 minutes around five times a week, preferably outdoors
  • Medication

    • In consultation with your doctor, if a wait and see approach is not appropriate, take one of the disease-modifying drugs (many may not need a drug, and drug selection should be carefully weighed against side effects)
    • Steroids for any acute relapse that is distressing
    • One of the more potent drugs if the disease is rapidly progressive

The MS Society, on its website, has expressed a note of caution. It says there is no conclusive evidence of the benefits of the proposed diet, a key component of the programme. It warns that the diet may not provide enough protein and may be too low in energy.

omsThe society says: “The OMS diet recommendations are similar to the Swank diet. It advocates cutting out dairy and meat, and reducing fat intake – particularly saturated fat. It also recommends supplementation, particularly with omega 3 (in the form of fish oil or flaxseed oil) and vitamin D if your exposure to sunlight is limited.

“Research into this diet has not provided conclusive evidence of its benefits. However, as with the Swank diet, following the OMS programme is not likely to be considered bad for you.

“You should make sure you’re getting enough protein in your diet, through eating plenty of fish, beans or pulses. Likewise, the diet may be low in energy, so it may not be suitable for you if you have high energy needs or you are already underweight,” says the society.

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Affiliate disclaimer: This affiliate disclosure details the affiliate relationships of MS, Health & Disability at 50shadesofsun.com with other companies and products. Read more.

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50shadesofsun.com is the personal website of Ian Franks, a freelance medical writer and editor for various health information sites. He enjoyed a successful career as a journalist, from reporter to editor in the print media. He gained a Journalist of the Year award in his native UK. Ian received a diagnosis of MS in 2002 and now lives in the south of Spain. He uses a wheelchair and advocates on mobility and accessibility issues.

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Some MS dates for your 2017 diary

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MS

Happy New Year

Yes, it has arrived at last and so, today, I bring you a calendar of notable events that are planned for the next 12 months. Please note that this is not meant to be a complete or exhaustive list, just those I have picked out for your diaries.

To make it easier to find out more details, each event listed below includes a link to the organiser’s website.

February

22-23 Advanced Curriculum for Multiple Sclerosis, A pre-ACTRIMS Forum 2017 program, Orlando, Florida, USA.

23-25 ACTRIMS Forum 2017, Orlando, Florida, USA.

March

Multiple Sclerosis Awareness Month, USA – The Multiple Sclerosis Association of America (MSAA).

3-9 MS Week, UK.

7-13 MS Awareness Week, USA.

23-26 11th World Congress in Controversies in Neurology (CONy), Athens, Greece. (MS March 24).

May

Multiple Sclerosis Awareness Month, Canada.

19-20 EMPS (European MS Platform) Spring Conference, Athens, Greece.

24-27 CMSC (Consortium of MS Centers) Annual Meeting, New Orleans, Louisiana, USA.

31 World MS Day 2017. The theme will be ‘Life with MS’.

October

25-28 Seventh joint ECTRIMS (European Committee for Treatment and Research in MS) ACTRIMS (Americas Committee for Treatment and Research in MS) meeting, Paris, France.

All the very best for the 12 months ahead, wherever you are.

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ian-skype_edited50shadesofsun.com is the personal website of Ian Franks, who is Managing Editor (columns division) of BioNews Services. BioNews is owner of 50 disease/disorder-specific news and information websites – including MS News Today. Ian has enjoyed a successful career as a journalist, from reporter to editor, in the print media. During that career he gained a Journalist of the Year award in his native UK. He was diagnosed with MS in 2002 but continued working until mobility problems forced him to retire early in late 2006. He now lives in the south of Spain. Besides MS, Ian is also able to write about both epilepsy and cardiovascular matters from a patient’s perspective and is a keen advocate on mobility and accessibility issues.

 

 

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