Just the other day, I drew attention to information available for anyone newly diagnosed with multiple sclerosis. As examples, I gave details of literature available in both the USA and the UK.
All well and good but, besides the MS Society and the MS Trust, Britain has the luxury of having a third national organization. This is called MS-UK and I left it out of my post.
MS-UK was established in 1993, and is a national charity dedicated to empowering people with multiple sclerosis to make the most of today, and live life to the full.
It says it puts people affected by MS at the heart of its work. It provides high quality, professional services to support people living with multiple sclerosis, and listens to people affected by the disease.
The MS-UK website says: “Around 100,000 people in the UK have multiple sclerosis, and we are here to make sure that each person affected by MS has choice, control and independence.
We support anyone, which includes carers, families, and professionals, who may be affected by multiple sclerosis. So, whether you have a question about yourself or someone else, you can ask us. There are no taboo subjects at MS-UK, and we are an independent charity, so we are able to provide completely unbiased information.
Talking of information, the charity offers its own support for the newly disabled. It is a 40-page book, titled Newly diagnosed with multiple sclerosis? And it is available to download, absolutely free of charge, here.
It is a well-written and easy to read publication that sets out information in a clear and simple style.
It covers the full range of questions that anyone newly diagnosed may have, starting with ‘what is happening to me?’.
It talks about a patient’s healthcare team, getting the most out of appointments and treatment that may be received.
It touches on lifestyle and wellbeing before tackling the issue of talking about having the disease, such as discussing with family and friends as well as that ever present problem ‘Who should I tell?’
Support is vital section, including welfare benefits, practical help and answering the question ‘What is there for me?’, and details support available from MS-UK itself.
Finally, it includes a Symptom diary that new patients can use to keep track of what symptoms they experience and when.