The MS Society has discovered 3,000-plus people under the age of 65 living in care homes for older people. And that includes younger people with MS.
So, almost one in seven younger adults in UK residential care could be living in homes not designed for them. Yes, it’s amazing, shocking, but true.
It’s clear that homes dedicated to older people don’t always meet the needs of younger disabled adults.
Living with significantly older people, often with complex conditions, can take its toll on younger adults with MS. Such conditions tend to negatively affect their quality of life and mental health.
The society says that people with MS should have a choice of care, whatever their age and needs.
On its website, the society declares: “This is yet another example of a social care system in crisis.
“As part of our campaign to End the Care Crisis, we’ve launched a new report showing people with MS aren’t getting the essential support they need.”
Care crisis: What needs to be done
MS Society recommendations on the steps that need to be taken to improve the system are also included in the report.
We did a survey with the Care and Support Alliance (CSA) to find out how the British public feel about the care crisis. We asked them what they would expect if they needed social care themselves.
We found out:
• Six out of ten (61%) people believe the care younger disabled adults receive is embarrassing
• Three quarters (75) say they would be scared for their future if they became unable to look after themselves
• Eight in ten (79%) want the government to urgently fix the social care system
• People rank social care as the second most important issue facing our government compared to issues on a similar scale
MS Society chief executive Michelle Mitchell said: “In 20 years, we’ve seen at least 10 government consultations and reviews on social care, but haven’t seen the change we urgently need.
“Our polling shows the British public is appalled by government inaction and believe our country must do better to support those who need help to live independently.”
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50shadesofsun.com is the personal website of Ian Franks, a freelance medical writer and editor for various health information sites. He enjoyed a successful career as a journalist, from reporter to editor in the print media. He gained a Journalist of the Year award in his native UK. Ian received a diagnosis of MS in 2002 and now lives in the south of Spain. He uses a wheelchair and advocates on mobility and accessibility issues.