Our British Airways flight from Madrid to Heathrow was beset with problems. First, there was a ‘technical issue’ with the plane. At least, that was the official explanation but one of the staff at the boarding gate revealed that a bird had got on board and was being removed. Then, once we landed in London, … Continue reading Our trip to hell – part 2 – Los Angeles
Hi everyone, sorry it has been so long since I last wrote but what started as a dream vacation two months ago, turned into a nightmare. A nightmare that has not yet finished. It will take me more than one post to let you know what happened. For now, I’ll just give you a brief … Continue reading Our trip to hell and back! Really? Back?
It was a strange day, well, certainly out of the ordinary! I am talking about last Friday, November 8, 2019. First of all, it was my birthday (yep, now 67, getting on a bit) but it was also the day I had to see my neurologist for my regular MS check-up. Not the day I … Continue reading Birthday presents: True diagnosis and a possible treatment
Police on your doorstep late at night is never a good sign. If their business cannot wait until the morning, it must be serious, right? And, so, it happened. Just before midnight, a car pulled up and two uniformed officers came straight to our house. No, we had done nothing wrong – they didn’t want … Continue reading Late night police visit to pick me up
Hi This is just a brief note to say that 50shadesofsun.com is up and running again. I know there has been a lack of posts for a few months, but the site is back in business. Regular readers will know that I live with multiple sclerosis, an unpleasant, unwanted, degenerative disease. It is oppressive and … Continue reading 50shadesofsun.com is back
Picture the scene. You are several floors above ground and the fire alarm sounds. You have not been informed of either a drill or a test and, so, the instructions are: evacuation. Just one problem, you have mobility issues. You either use a wheelchair or can on walk down the stairs with great difficulty, in pain, … Continue reading Several floors up, fire alarm sounds – but you have mobility problems
Blocking of a drug as a treatment for primary progressive multiple sclerosis (PPMS), making it unavailable for use by the UK’s National Health Service (NHS), is being challenged by the country’s MS Society. And it has coupled its opposition with a call to arms – inviting everyone to #SpeakupforMS. Holly, from the society’s campaigns community, … Continue reading Give people with PPMS the treatment they need, MS Society campaign #SpeakupforMS