MS organisations battle for SPMS treatment to be available to those who need it. Draft guidelines challenged.
Ian Franks accuses government of being disingenuous - as well as uncaring, lacking compassion, discriminating against people with disabilities, and ... being pathetic.
MS Society, with other members of the Disability Benefits Consortium, is stepping up its fight for equality by asking us to sign an online petition to the UK government.
MS Awareness Week has arrived in the UK, to be met by the fifth week of the country’s COVID-19 lockdown. Faced with events being postponed, the MS Society wants us to flood social media with stories of MS - to raise awareness of all its symptoms
Please note: The current Coronavirus Covid-19 pandemic is fast moving, and reactions to it seem to update not just day-by-day but minute-by-minute. Obviously, this site was not designed to bring you the very latest developments in a ‘breaking news’ story such as this. Instead, this site will continue to include news and opinions relating to … Continue reading COVID-19: MS society calls for urgent changes to benefits
As MSers seek information and guidance in the face of coronavirus, Ian Franks has some answers from the USA's NMSS and the UK's MS Society.
MS Awareness Month begins on March 1, just three days away, so it is just the right time to look at how many of us are living with the disease, and to look ahead to taking part in, supporting, and having fun enjoying its activities,
It will probably be no surprise, to regular readers, that I pay special attention to both the development and availability of treatments for PPMS (Primary Progressive Multiple Sclerosis). Ocrevus is now approved to treat early PPMS on NHS in all UK.
Blocking of a drug as a treatment for primary progressive multiple sclerosis (PPMS), making it unavailable for use by the UK’s National Health Service (NHS), is being challenged by the country’s MS Society. And it has coupled its opposition with a call to arms – inviting everyone to #SpeakupforMS. Holly, from the society’s campaigns community, … Continue reading Give people with PPMS the treatment they need, MS Society campaign #SpeakupforMS
Ocrevus may have taken the worldwide multiple sclerosis community by storm but it seems set for a rocky ride in the United Kingdom. It’s quite possible that it will not be available through the country’s National Health Service (NHS). Although the drug1, known by the non-brand name, ocrelizumab, was licensed by the European Medicines Agency … Continue reading MS drug Ocrevus could be barred from health service