Ups and Downs of one of ‘those’ days

kate3_edited IMG_0786_edited  UP: Kate who posted the video that went viral. DOWN: My car’s gearbox goes wrong – again.

Have you ever had one of ‘those’ days? Well, yesterday was certainly one of those for me.

It started before Lisa and I went to bed. Just after midnight, I posted a new entry on my blog site and the viewing figures started piling up like nothing I’d ever seen before.

It was no surprise that the post was popular as it was about Kate, a 30-year-old Welsh woman with MS who had videoed herself having an attack so she could show it to her neurologist. Then she published it on her own Facebook page and people started to take notice.

My blog got attention too and the viewers kept coming, both reading the story and watching the video. By the time 24 hours had passed and midnight came around last night, yesterday’s post had proved to be my blog’s best day ever – and by some considerable way. If you missed yesterday’s post that includes Kate’s video, you can find it here: https://50shadesofsun.com/?p=1429

One of ‘those’ days could not be all good however – and so it turned out when our car went wrong again. Regular readers of this blog will know that our car was previously out of action from Christmas Eve when the automatic gearbox gave up the ghost. The car was collected by an automatic gearbox specialist some 300km/190miles away in Malaga.

They sorted it out and delivered it back on Tuesday, four days ago. It stayed in our drive on Wednesday and we used it for the first time on Thursday; we only drove about 20km/13miles and everything was fine.

Yesterday we did the same trip but as we approached the area in which we live, it was obvious that all was not well and so, instead of turning off the main road towards home, I turned into the nearby mechanic’s workshop. He quickly confirmed my thoughts; it is the same thing, the gearbox, he said.

Lisa and I left the car there and he took us home, later delivering my electric wheelchair which had been in our car. So, now we were back to square one – at home but without a car.

No time like the present, I telephoned the gearbox specialist in Malaga. His pleasant “How are you?” was met by me saying “I am fine but the car isn’t”. I explained what had happened and what the local mechanic had said.

Fortunately, the gearbox is under a 12-month guarantee so they are sending a recovery vehicle to collect it on Tuesday and they will be bringing a courtesy car for us to use until our car returns again.

Without a doubt, yesterday was one of ‘those’ days.

Kate’s MS seizure video gets thousands of views

 

Kate, as pictured in the video.

 

 

 

 

 

 

 

 

 

 

 

 

 

Kate, as pictured in the video.

 

Although we have never met, I know Kate Langwine-Cooke to be a woman on a mission. She lives in Wrexham in North Wales, UK, and has MS but is determined not to let that stop her. She raised money for MS-UK and the MS Society through a physically exhausting 100km bicycle ride on a static bike, she works with young people and even coaches boxers as well as a football (soccer) team.

Added to that she campaigns on behalf of people who have ‘invisible illnesses’; after all, not all illnesses and disabilities are obvious. For example, many people have a great deal of pain manage to keep it hidden.

Kate’s symptoms are mainly hidden from public view, so it was somewhat of a surprise to see her post a graphic video on Facebook a few days ago. This was not one of her more traditional videos which many have described as inspirational; this was Kate having a seizure in all its terrifying detail.

When she turned on her trusty video recorder, her thoughts were purely on recording the seizure to show to her neurologist as she found it so difficult to describe. But then decided to use it on her Facebook page as well.

That video as since had thousands of views; in fact, 4,00 in just its first two days online.

Speaking to the Press, Kate said: “I put the camera to record because I felt my head beginning to shake in a sort of rocking motion which was an alarm bell after having been ‘ambulanced’ into ‘resus’ at the Maelor (Hospital) last Wednesday night.

“On Wednesday, I ended up semi-comatose following an attack of paralysing tremors which had lasted about 25 minutes. I was unconscious for a total of three hours, and when I momentarily did regain consciousness, I was completely paralysed from the neck down. It was terrifying.”

CT scans at the hospital showed the seizures were caused by brain damage due to multiple sclerosis. After returning home she suffered a further attack and tremors.

Kate said: “I cannot express how frightening it is not knowing if I will stay in that paralysed state for the rest of my life. MS is so unpredictable.

“The video I put to film as evidence for my neurologist at Walton Hospital, Liverpool, to see as it is very difficult to describe the attacks.

“I made the decision to post the video on my Invisible Illnesses Facebook page as part of my campaign to raise awareness of not only MS but the fact that a lot of horrendous conditions go unnoticed if a person is not in a wheelchair or using a walking aid.”

She said: “The video isn’t nice to look at, but I don’t mind sharing my life if it helps raise awareness of MS and its extremes.

“There has got to be a positive to come from all this. Four thousand views in two days is crazy,” she added.

 

To view Kate’s video, click this link: https://youtu.be/uMzE_ioUHno